In this episode of The Pelvic Power Podcast, we continue the conversation with Kathy Ruiz-Carter — exploring what it really looks like to feel supported, empowered, and less alone on your journey with lichen sclerosus.
Together, we explore:
how to support someone living with lichen sclerosus (and why it matters more than you think)
navigating vulnerability in relationships and opening up to others
the impact of medical gaslighting — and how to advocate for yourself in those moments
why community and shared experiences can be so powerful
and how to keep moving forward, even when things feel heavy
This episode is a reminder that:
there is support available, your voice matters, and there is hope.
✨ This is Part 2 of a two-part conversation.
Enjoy🫶🏽
Kathy Ruiz-Carter spent five years in the "wait and see" cycle of medical dismissal, searching for answers while her symptoms were brushed off as simple allergies. But those five years in the dark eventually became the blueprint for the Lichen Sclerosus Support Network (LSSN). As the Executive Director and Founder of LSSN, Kathy has transformed her own experience of being "lost in the system" into a global roadmap for thousands of others. She is the visionary behind the Wholistic Healing Summit and is dedicated to helping patients move from fragmented, confusing care to an integrated life where they feel in control of their bodies again. Kathy isn’t just a patient advocate; she is a bridge-builder who ensures that no one has to be their own medical coordinator without a map.
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