In this episode of The Pelvic Power Podcast, we are joined by Kathy Ruiz-Carter, co-founder of the Lichen Sclerosus Support Network, for an open and honest conversation about living with lichen sclerosus.
In today's episode we talk about:
what it can feel like to navigate this condition in the beginning
the experience of not feeling heard or supported
why getting the right information matters more than you think
the role of community in healing and feeling less alone
and how to start advocating for yourself in your care
This episode is a reminder that even if your journey has felt isolating or confusing, you are not alone — and there are people and resources out there to support you.
Kathy Ruiz-Carter spent five years in the "wait and see" cycle of medical dismissal, searching for answers while her symptoms were brushed off as simple allergies. But those five years in the dark eventually became the blueprint for the Lichen Sclerosus Support Network (LSSN). As the Executive Director and Founder of LSSN, Kathy has transformed her own experience of being "lost in the system" into a global roadmap for thousands of others. She is the visionary behind the Wholistic Healing Summit and is dedicated to helping patients move from fragmented, confusing care to an integrated life where they feel in control of their bodies again. Kathy isn’t just a patient advocate; she is a bridge-builder who ensures that no one has to be their own medical coordinator without a map.
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