Before the Diagnosis: What to Do When Your Child Is Struggling and Support Feels Miles Away - The Autism Mums Podcast | Lyssna här

In this week's episode of The Autism Mums Podcast we're talking about what to do when your child is struggling and support feels a long way off.

We talk honestly about what it feels like when things start to break down before any formal support is in place, and share the practical things that actually helped us and our children during that difficult waiting period.

Key Takeaways

You are not alone — there will be other parents in the same situation, often hovering outside the same school gate.
Schools receive additional funding for children on the SEN register even without an EHCP. You can ask how this funding is being used to support your child.
Under Section 19 of the Education Act 1996, your local authority has a legal duty to provide suitable full-time alternative education for children who cannot attend school - this applies whether or not your child has an EHC plan.
Councils and schools don't always tell you what's available. Do your own research.
SENDIASS offers free, impartial advice.
When your child's nervous system is overwhelmed, reduce demands across the board, including everyday things like getting dressed or sitting at the table. This is temporary, and you can rebuild later.
Lean into whatever regulates your child, whether that's screens, gaming, Lego, or their special interest. This is not the time to restrict it.
Movement, nature, and quieter environments can be powerful regulators, particularly away from busy, sensory-heavy places.
Other parents ahead of you on this journey are one of your best sources of information.
If you can access the Early Bird course (or a similar programme in your area) even before a formal diagnosis it can be well worth it.
It is okay to say no to birthday parties, family events, and social obligations that are too much right now, for your child and for you.
Look after yourself. Connect with other parents, speak to your GP, consider counselling. You cannot advocate well for your child if you are running on empty.
Trust yourself. You know your child better than anyone. Don't let that be swayed.

Mentioned in This Episode

SEN Budget for Mainstream Schools

Advice about School Anxiety

Getting Temporary Education Put in Place

SENDIASS — free, confidential, impartial advice and support for families of children with SEND: find your local service

The Horse Course — equine intervention for children with anxiety: thehorsecourse.org

Early Bird Programme — support for families of autistic children, usually post-diagnosis

Connect with The Autism Mums

Website – https://theautismmums.com/

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