In recognition of Rare Disease Day, our staff member Emily had the pleasure of catching up with Renee Brown, Secretary for the Australian Pompe Association. Renee speaks about Pompe, its daily challenges, and the importance of raising awareness of rare conditions.

 

To learn more about Pompe and support available, contact Renee at secretary@australianpompe.org.au.

 

To find out about peer Support Groups in WA, contact ConnectGroups at info@connectgroups.org.au.

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