The Expert Series S9E8: Managing Care When You Don't Have Regular Access to a Rheumatologist

In this episode of the Lupus Foundation of America's The Expert Series podcast, we focus on managing lupus when access to a rheumatologist is limited, including regular testing, medication management, telehealth, and self-advocacy. Our guest, Dr. Candace Feldman, shares how people living with lupus can document symptoms, prepare for appointments, communicate medication concerns, and use healthcare resources effectively while staying engaged in their ongoing care.

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This episode will help you understand:

• Diagnosis delays and access issues in lupus care
• How to prioritize symptom monitoring and documentation
• The importance of medication adherence and management
• The role of telehealth in ongoing lupus management
• Self-advocacy and patient-provider communication

Related Resources:

• Ask a Lupus Health Educator (LFA): https://www.lupus.org/care-support/ask-a-health-educator
• Find Support Near You (LFA): https://www.lupus.org/resources/find-support-near-you
• National Resource Center on Lupus (LFA): https://www.lupus.org/resources
• The Expert Series (LFA): https://www.lupus.org/resources/lupus-the-expert-series
• American College of Rheumatology: https://rheumatology.org/
• Arthritis Foundation: https://www.arthritis.org/