In this episode of the Lupus Foundation of America's The Expert Series podcast, Dr. Nicoleta Skoufalos discusses lessons from her new book, Understanding Autoimmune Disease: A Therapist's Guide to Invisible Illness. This conversation focuses on the emotional and psychological impact of living with autoimmune diseases like lupus. Topics include loss of identity, trauma, finding the right mental health support, and strategies for integrating illness into one's sense of self.
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Episode Takeaways:
Autoimmune disease can disrupt identity and strain personal relationships
Misdiagnosis and medical gaslighting often create lasting emotional trauma
Accessing the right mental health support is essential for autoimmune patients
Clear communication strategies help others better understand invisible illnesses
Rebuilding identity and discovering new meaning is a key part of life after diagnosis
Related Resources:
Ask a Lupus Health Educator (LFA): https://www.lupus.org/care-support/ask-a-health-educator
Find Support Near You (LFA): https://www.lupus.org/resources/find-support-near-you
National Resource Center on Lupus (LFA): https://www.lupus.org/resources
The Expert Series (LFA): https://www.lupus.org/resources/lupus-the-expert-series
Understanding Autoimmune Disease: A Therapist's Guide to Invisible Illness: https://www.penguinrandomhouse.com/books/807102/understanding-autoimmune-disease-by-nicoletta-skoufalos-preface-by-cristina-dorazio-phd-foreword-by-sue-gloor/
Managing Your Mental Health with Lupus (LFA): https://www.lupus.org/resources/lupus-and-depression-know-the-signs-and-how-to-get-help
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