Sarah Crawford, CEO of TLC, joins Shannon to talk about some of the challenges facing today's families, including burnout, barriers to healthcare and much more. Today's jargon term is Respite!
00:00 Intro & Today's Guest Preview 00:35 Welcome to Autism Live & Community Mission 03:19 How to Participate, Podcasts & Viewer Support 06:20 Autism Care Today Gala & Family Grants 08:54 Jargon of the Day: What Is Respite Care? 11:53 Why Caregivers Need Respite Support 14:49 Finding Safe, Trusted Respite Providers 18:47 The Oxygen Mask Principle for Parents 19:50 Meet Sarah Crawford, CEO of TLC 22:22 The TLC Story: From Three Families to Thousands Served 26:01 Parent Burnout, Caregiver Stress & Finding Support 32:31 How Disability Impacts the Entire Family 37:15 First Steps After an Autism Diagnosis 44:04 Medicaid, Waitlists & Fixing Broken Systems 50:37 Hope, Advocacy & Building Better Support Networks
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