Enhancing the Patient Experience in ALS Research

In the world of ALS research, the focus often lies on scientific rigor and data collection. Yet, as Corey Straub, a clincial development consultant who's worked in job is to enhance th patient experience, reminds us, the human experience of participating in clinical trials is equally significant.

In this episode, Corey Straub shares insights on how small, human-centered changes in clinical trial experiences can significantly improve participant satisfaction, recruitment, and retention in ALS research.

Topics

• The importance of patient experience in ALS trials
• How small acts of kindness improve recruitment and retention
• The development and impact of the ALS patient experience program
• The role of human moments in clinical research
• The creation and growth of INARC, the international ALS research network

Summary

• Small acts like providing coffee or entertainment can significantly improve participant experience.
• A positive participant experience can lead to faster recruitment and higher retention.
• Building human connections in clinical trials benefits both participants and research teams.
• Supporting participants' emotional and physical needs can improve trial outcomes.
• INARC connects ALS research and care professionals globally to advocate for better practices.