Do you have to fight everyone around the table to advocate well for your child? Many parents feel intimidated by disability advocacy. They worry they're not doing enough and don't know enough to be a good advocate for their child and a good teammate to the other people in their child's life. Researcher Meghan Burke joins Amy Julia Becker to share what non-adversarial advocacy looks like—from special education and IEPs to the transition into adult disability services—and where to find support along the way.
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00:00:00 Introduction and Meghan Burke background 00:02:56 Defining advocacy and its levels 00:06:18 Barriers in advocacy and meetings 00:09:00 Strategies to overcome barriers 00:11:16 Resources for advocacy training and support 00:15:31 Non-adversarial advocacy and partnership with schools 00:18:54 Navigating adult disability services 00:23:49 Next steps and practical advice for parents _
Advocating for SupportS to Improve Service Transition (ASSIST): https://www.illinoislifespan.org/toolbox-transition/ (follow the link and scroll down to the section with YouTube videos; also available in Spanish)
Meghan Burke is a professor of special education in Peabody College at Vanderbilt University. Her research interests include advocacy, families (i.e., parents and siblings) of individuals with disabilities, and disability policy. Her research examines how families advocate for services with their family members with disabilities. She also conducts research examining how siblings of individuals with disabilities transition to caregiving roles.
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Take the Next Step is a resource from the Hope Heals Network, a collective of thought leaders offering honest and hopeful wisdom to help people flourish in the good and hard parts of their stories. To learn more about the work of Hope Heals, visit hopeheals.com or follow @hopeheals on Instagram.
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