Ep 31 - The Unseen Burden: Uncovering Shame and Its Determinants in Parkinson's Disease

🎙️ We’re back with episode 31 of Parkinson Weekly, hosted by Prof. Bas Bloem.

In Episode 31 of Parkinson Weekly, Prof. Bas Bloem explores an often overlooked but deeply important aspect of Parkinson’s disease: shame. Discussing a thought-provoking new paper published in Movement Disorders Clinical Practice, Bas examines how feelings of shame can significantly affect the lives of people living with Parkinson’s.

The episode highlights findings from a Swiss study investigating the relationship between shame, anxiety, guilt, dyskinesias, depression, apathy, and overall quality of life in Parkinson’s disease. Bas reflects on why this under-recognised issue deserves far greater attention in clinical practice and everyday conversations.

Importantly, the discussion goes beyond medication, emphasising the value of open communication, awareness, and non-pharmacological support in helping reduce the burden of shame for people with Parkinson’s and their families.

A thoughtful and compassionate episode shedding light on the emotional realities of living with Parkinson’s disease — and why acknowledging these experiences is an essential step toward better care.

You can read the full article here: https://pubmed.ncbi.nlm.nih.gov/40384367/

 Have a question you’d like Bas to answer in a future episode? Email us at parkinsonweekly@gmail.com – we’d love to hear from you.