In this first Sibling Takeover episode, host Christian Dias hands the microphone to Tenley, age eleven, whose older sister Addie has MED13L syndrome. Christian's own sister, Elle, has MED13L too.

The Sibling Takeover series gives the brothers and sisters of people with MED13L a chance to share the journey in their own words. Christian and Tenley trade stories about growing up alongside a sibling with MED13L. They talk about the games they play together, like backyard volleyball and Uno, and about Addie's big personality. Tenley describes the patience it takes when a sister communicates more slowly. She shares what she has taught Addie, and what Addie has taught her in return: to listen more closely, to be less quick to judge, and to feel more like herself.

The two also talk about what they wish other kids their age understood about siblings like Addie and Elle.

The Voices of MED13L is a podcast from the MED13L Foundation. To learn more about MED13L syndrome and the Foundation's work, visit med13l.org.

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Resources

Strides for Stripes: Move for Mito | Pledgestar campaign

Denver Mini-Conference: Get your tickets


MED13L Awareness Campaign: https://secure.qgiv.com/event/med13lfoundationp2p/

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Community Enrollment Form

Community Checklist: Google Drive Link

CRID: thecrid.org

Citizen Health: citizen.health/partners/med13l-foundation

Simons Searchlight: https://research.simonssearchlight.org/account/create

Rare-X: rare-x.org/med13l

Link Tree:  List of Resources

Website: med13l.org

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