When a story about one woman's search for care sparked a flood of messages, we began investigating Ontario's healthcare system and the possible obstacles facing people with Ehlers-Danlos syndrome (EDS), especially those with craniocervical instability (CCI).
For patients living with EDS, getting a diagnosis can take years. And when complex spinal conditions enter the picture, some patients and their families say they have been forced to look to the United States for help because they believe there is no surgeon in Canada able to provide the care they need. In this special episode of (Mis)Treated, we meet patients whose lives have been upended, families fighting for answers, and doctors who disagree about how these conditions should be treated.
