This is a different episode to usual, as for the first time ever rather than a clinician I am joined by someone with a very rare condition.

On this episode I am joined by Jen who has a diagnosis of thevery rare painful neurovascular condition Erythromelalgia and reached out to me to arrange this episode where we discuss:

 

(00:00:00) – What Is Erythromelalgia?

(00:02:08) – How It Feels Having A Very Rare Condition

(00:04:38) – Jen’s Journey Before & After Diagnosis

(00:43:50) – What Jen Would Have Changed About Her Journey

(00:51:40) – What Were The Best Conversations Jen Had

 

You can see Ben at the North East Musculoskeletal Society(NEMS) Conference on Saturday 19th of September in Durham.

https://www.eventbrite.co.uk/e/north-east-musculoskeletal-conference-2026-tickets-1981008464645

You can find Ben on LinkedIn and Instagram @bwhybrowphysioor email clinicalcommunication@outlook.com

You can contact Ben on the above if you’d like to speak withJen

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