In my conversation with hosts and journalists Miles Griffis and Betsy Ladyzhets, we discuss ways people with long COVID can better judge research, treatments, and online claims without getting overwhelmed by hype or pseudoscience. I also explain my approach to reading studies, thinking through off-label treatments, and spotting red flags in medical content.
Timestamps
00:00 - Opening and why this episode matters for the long COVID community 02:35 - Dr. Khan introduces herself and her path from ICU physician to long COVID patient 04:41 - Why long COVID care still falls short and medicine has not caught up 08:28 - How off-label treatments work and how patients can think about them 12:28 - Dr. Khan’s process for reading a clinical trial or research paper 17:12 - How to bring research to a clinician without getting dismissed 20:48 - Choosing between sequential treatment and trying multiple interventions at once 24:20 - Triaging the most painful problem first in a complex illness 26:31 - Why long COVID care feels overwhelming and why prioritization helps 27:01 - Spotting pseudoscience and misinformation in long COVID content 30:06 - Red flags: certainty, conspiracies, “root cause” language, and brain retraining claims 33:22 - Staying hopeful and remembering long COVID patients are not alone 34:35 - Research update: skeletal muscle abnormalities in long COVID and ME 35:15 - Research update: large genetic study links fibromyalgia to the central nervous system 36:01 - Research update: racial disparities in long COVID diagnosis 36:48 - Credits and closing
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