Actor, writer, and disability advocate, Alicia Grace is a spark of joy! She joined us to talk about living with blindness and a brain tumor. We talk about How to Train Your Dragon, the first film that helped her connect to her disability, and the limited series, All the Light We Cannot See, which included a blind character (and actor) who was more than her disability.
Alicia really wants to have more authentic representations of people living with a brain tumor on film and TV. Brain tumors are often used to have a character suddenly on their deathbed or show a miracle cure moment, but often people with brain tumors live on a wait-and-watch period, like Alicia, who has had her brain tumor her whole life. Her mantra is No Day But Today – a song in the musical Rent by Jonathan Larson. He inspired her to live her life in love and not fear, as she lives through six-month periods between MRI scans.
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