The patient voice is no longer optional. Samantha Nier, Chair of the Patient Advocacy Committee (PAC) at EHA and a leader within the Acute Leukemia Advocates Network (ALAN) explains why clinical trials change for the better when patients are involved from the start.
She highlights the importance of involving patients in clinical trial design, informed consent, and research protocols so that care decisions reflect not only scientific goals, but also real-life patient experience, quality of life, and treatment burden.
Samantha shows also how patient organizations contribute to many EHA initiatives, helping to shape guidelines, scientific congress sessions and European-level projects.
A thoughtful discussion about advocacy, inclusion, and the power of listening to the people most affected by disease.
Guests:
Samantha Nier
Affiliation: Chair of EHA's Patient Advocate Committee & Network Director of Acute Leukemia Advocates Network
Host:
Isabel Olivera-Martínez, PhD,
Medical Writer for EHA
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