From Lived Experience to Lasting Change: The Power of Patient Advocacy

Patient voices have the power to shape research, healthcare, policy and the future of neurology — but how can those voices be heard?

In this episode of One Voice for Neurology, Sam Pauly is joined by Joe Lindahl, CEO of Mission MSA, and Naomi Fukuda, parent and patient advocate at Dravet Syndrome Japan, to explore the power of patient advocacy and lived experience. They discuss the barriers that can prevent patients and families from finding their voice, the importance of engagement, empowerment and collaboration, and how working together can amplify impact.

From influencing policy and drug development to supporting families and building hope for the future, this conversation highlights why every patient voice matters — and why lasting change happens when we use those voices together.

The One Voice for Neurology podcast with Sam Pauly is produced on behalf of OneNeurology, a global partnership bringing together neurological organisations, clinicians, researchers, patient advocates and industry suppporters to make neurology a global health priority. 

To explore OneNeurology's work and find out more, visit https://oneneurology.net/