Motor Neurone Disease MND / ALS with Pauline Matheson Marks, MND Association and Jon Machel

We talk about motor neurone disease (MND), also known as Amyotrophic Lateral Sclerosis (ALS), with Pauline from the MND Association and Joff, who shares what diagnosis and day-to-day life really look like. We explore how symptoms show up, why support and research urgency matter, and how small acts of understanding can make public spaces safer and kinder. 

• What MND is and why symptoms vary so much 
• The long process of ruling out other conditions 
• Prevalence 
• Resilience and adapting to change
• The helpful role of the Sunflower in preventing being misjudged

If you are concerned about any of the subjects discussed in the podcast, please follow up with your healthcare practitioner for support.

For support

• MND Association UK
• Irish Motor Neurone Disease
• The ALS Association USA
• ALS Canada

Hosted by Chantal Boyle, Hidden Disabilities Sunflower.
 
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Find out more about the Sunflower by visiting the website hdsunflower.com

Music by © Sandee Facy / Michael Saleta www.sandeefacy.com.au