S12E12: Diagnosed with a rare disease — now what?

In this episode, we talk about what newly diagnosed patients are going through, the challenges that can overwhelm even the most centered person, the potential isolation, and how hard it can be to find good information even when it's out there. We get into something we care a lot about: the gap between all the great medical research on acromegaly and the practical, everyday guidance patients many times need: how to exercise, how to eat, how to live. Risa shares about the grief of letting go of the athlete she used to be, and how mindfulness helped her find her way back to a fuller life. We focused on things like nutrition, exercise, mental health support, identity grief, learning how to switch your brain to the ‘Off” position with mindfulness, and all the help needed to rebuild a fuller life.