When it comes to managing family life with a child who has a bleeding disorder, parents aren’t just caregivers – they’re organisers, advocates and educators. Alongside managing their child’s condition, they have to help them understand it too.
In this episode of Haemcast’s special series in collaboration with Local families with bleeding disorders, parents discuss how they go about talking to their child about their bleeding disorder – helping them understand where it comes from, what it means for their day-to-day lives, and why their treatment is important.
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