Chicken Soup for the Flow: stories of extreme bleeds, medical gaslighting, and HTC's (part 1)

Recorded live in session at HFM's Conference for Women with Bleeding Disorders in Detroit, Michigan!

Flow is a monthly podcast dedicated to the bleeding disorders community - in October 2025, Flowsters Sarah and Jessica spent time in Michigan to collect powerful personal stories of both medical gaslighting and health advocacy. In this recorded-live episode participants discuss their experiences with extreme symptoms, the need for narrative medicine, and the recuring lack of testing for rare conditions. 

Program Notes:

Episode Links:

• Bloodstream Media: https://www.bloodstreammedia.com/

• HFM Conference for Women: https://hfmich.org/october-3-5-2025national-conference-for-women-with-hemophilia-and-rare-factor-deficiencies/

• On Burnout / Emily Nagoski: https://www.ted.com/talks/emily_nagoski_and_amelia_nagoski_the_cure_for_burnout_hint_it_isn_t_self_care

How's Your Flow?

• We wanna know (Calendly link): https://calendly.com/flowtalk/flow-talk-period-pain-stories

Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more.

Connect with BloodStream Media:

Find all of our bleeding disorders podcasts on 

BloodStreamMedia.com

BloodStream on Facebook 

BloodStream on Twitter 

BloodStream on Instagram

BloodStream on TikTok

BloodStream on LinkedIn

Check out Believe Limited's Other Work:

Bombardier Blood: bombardierblood.com

My Beautiful Stutter: mybeautifulstutter.com/

Stop The Bleeding!: stbhemo.com

The Science Fair: thesciencefair.org

On the Shoulders of Giants: https://www.ontheshouldersfilm.com/