In this episode you will meet a fantastic woman from Iceland, Hulda Björk Svansdóttir. She is not only a mother of a son, living with Duchenne muscular dystrophy, but also an influencer advocating for DMD through “Friday Fun – Dancing for Duchenne”. She and her son Ægir are dancing with different people, organizations, and families from all over the world and posting it on social media every Friday to raise awareness about the disease. They even danced with the prime minister of Iceland! Listen to Hulda’s story about when she first understood her son is suffering from the disease and her way of finding purpose and meaning in spreading hope and joy to raise awareness.
This podcast episode is recorded in connection to the World Duchenne Awareness Day (WDAD) which occurs on September 7 each year. This year’s topic is Women and Duchenne.
Podden och tillhörande omslagsbild på den här sidan tillhör The podcast series Take on Duchenne. Innehållet i podden är skapat av The podcast series Take on Duchenne och inte av, eller tillsammans med, Poddtoppen.
