Episode 28 | Financial Assistance For NMO & Critical Insurance Updates w/ the Pan Foundation

As we wrap up Season Three of the podcast, we are speaking with Amy Niles of the PAN Foundation. Amy is the Chief Advocacy and Engagement Officer, where she dedicates her time to building relationships, public policy, and advocacy initiatives. She joins us to discuss how PAN helps people manage the financial burden of chronic illnesses. Amy also explains important updates to Medicare and some new insurance practices that can be harmful to patients with life-threatening, chronic, and rare diseases.

ABOUT US:

The Demystifying NMO and MOG podcast is a Sumaira Foundation project and

was made possible with the generous support of Genentech.

SOCIAL & WEBSITE:

Amy Niles & The PAN Foundation

Website - https://www.panfoundation.org

Facebook - https://www.facebook.com/PANFoundation

Instagram - https://www.instagram.com/pan.foundation

Twitter - https://twitter.com/pan_foundation

Connect With Us

Website - https://www.sumairafoundation.org

Facebook - https://www.facebook.com/TheSumairaFoundation

Instagram - https://www.instagram.com/demystifying_nmomog

Twitter - https://twitter.com/DemystifyingNMO

TIMESTAMPS

00:02:02 Amy Niles & The Pan Foundation

00:04:16 A Day in the Life

00:05:54 Serving the NMO Comunity

00:06:29 Eligibility Criteria

00:09:03 The Application Process

00:11:30 The Fund Finder

00:14:58 Medicare Updates

00:20:37 Copay Accumulators

00:24:49 Alternative Funding Programs

00:30:54 Do You Have a Copay Accumaltor?

00:32:32 Legislation to Protect Patients & What You Can Do

LINKS:

Fund Finder - https://www.panfoundation.org/find-disease-fund

Find help with FundFinder - https://www.panfoundation.org/fundfinder

Neuromyelitis Optica Spectrum Disorder - PAN Foundation - https://www.panfoundation.org/disease-funds/neuromyelitis-optica-spectrum-disorder

Everything you need to know about Medicare reforms - PAN Foundation - https://www.panfoundation.org/everything-you-need-to-know-about-medicare-reforms

Ask your elected officials to support The HELP Copays Act and ban copay accumulator programs - https://www.panfoundation.org/end-copay-accumulators

CREDITS:

Producer & Host - Brian Dawson

Guest Photo - The PAN Foundation

Music - Denys Kyshchuk from Pixabay