15 Tumours, One Diagnosis | Austen’s NF2 Story

Austen was diagnosed with Neurofibromatosis Type 2 (NF2) in February 2025.

After years of worsening balance and hearing issues, he was repeatedly told nothing was wrong — until an MRI revealed multiple tumours.

At first, he was told there were four.

Then eight.

Then seven in his spine.

A total of 15 tumours.

In this honest and down-to-earth interview, Austen shares:
• Being dismissed for years before finally getting answers
• The shock of being diagnosed with a rare genetic condition
• Finding out the full extent of his tumours in an unexpected moment
• Living with hearing loss and balance issues
• Starting lifelong treatment with Avastin
• Making the decision not to have high-risk surgery
• The uncertainty of symptoms — not knowing what is tumour-related
• Fatigue and the reality of daily life with NF2
• Leaving work to prioritise his health
• The mental challenge of not knowing what the future holds

Austen speaks openly about how isolating rare conditions can feel — and why connecting with others who truly understand makes such a difference.

He also shares how something as simple as getting a dog completely changed his life, giving him purpose, routine, and a reason to keep going.

His message is simple:

You can’t let it run your life. Just take it day by day.

This episode is part of a 31-day series sharing real brain tumour stories for Brain Tumour Awareness Month 2026.

If this episode resonates with you, please share it. Every story helps raise awareness.

⚠️ Content note: This episode discusses brain tumour diagnosis, chronic illness, lifelong treatment, hearing loss, fatigue, and mental health challenges.