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Being a hypermobile athlete & navigating the medical system w/ Stormy Weather

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In this episode, Nikki is joined by PA and nutrition coach Stormy Weather to talk what it's like to be a hypermobile competitive athlete and navigating the medical system with hypermobility, POTS, and MCAS.

Topics covered:

  • Why being high-functioning and athletic often works against you when you're trying to get support from medical providers.

  • The mindset shifts required to train at a high level while also accommodating the symptoms and limitations that hypermobility presents with.

  • Why it's so difficult to get treatment and care within the medical system when you have symptomatic hypermobility.

Connect with Stormy Weather

Connect with Nikki Naab-Levy

Episode Timestamps:

00:00 | Stormy's background: PA, nutrition coach, and competitive masters athlete 

05:38 | Modifying your training goals as a competitive athlete with symptomatic hypermobility and long Covid 

08:39 | The boom-bust training cycle: managing flares without losing your fitness 

16:17 | Experiences with MCAS, dysautonomia, and potential medication options for hypermobility comorbidities 

30:34 | Low dose naltrexone: How it works and why it's gaining traction for hypermobility 

38:07 | Getting care on the fringes when the standard system has nothing for you 

40:08 | Navigating the medical system with hypermobility 

53:35 | Options to managing rib subluxations 

 

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