Living With PSC
Avsnitt

Ricky and Audra Speak about the Exciting New Treatments for PSC

Living With PSC
Dela

In this episode, Niall speaks with Ricky Safer and Audra Flemming from PSC Partners about a remarkable moment for the PSC community: Ricky's recognition by AASLD, growing research momentum, and the power of patient-led advocacy.
They discuss new developments in PSC and cholangiocarcinoma blood tests, the work of the PSC Partners International Collaborative Research Network, and why patient voices are becoming central to research and clinical trial design. Audra and Ricky also share news about the PSC Partners Conference taking place this November in Denver, in partnership with AASLD.
Niall admits he kept saying "wow" during the conversation, because there was so much hopeful news: international collaboration, patient-led research, progress in symptom-focused drug development, and a community that continues to shape the future of PSC care.
In This Episode
  • Ricky's AASLD award and what it means for the PSC community
  • New blood-test developments for PSC and cholangiocarcinoma
  • The PSC Partners International Collaborative Research Network
  • Patient-led research and the importance of lived experience
  • The November PSC Partners Conference in Denver with AASLD
  • Hopeful developments in PSC symptom treatment
Links
PSC Partners: https://pscpartners.org 

 

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