During this week's episode, Katie sits down with Ryan Solieau, an LSU Alum, and dad to a Henry who was diagnosed with Aplastic Anemia. Aplastic Anemia is a rare blood disorder where bone marrow stops making new red blood cells, which appeared in Henry as a heart rate of 250.
Ryan takes us through the experience of learning a new reality during all phases of Henry's diagnoses, from learning how to navigate Henry's initial hospital stay, all the way to supporting Henry emotionally during his monthly transfusions. In the episode, we also learn from Ryan how crucial it is to take care of oneself in order to be the best advocate for Henry.
Timestamps
1:37 - Intro to Ryan
3:38 - The Hospital Experience: A Second Family
6:24 - The Diagnosis: A Life-Changing Moment
9:38 - Navigating the Medical System
13:49 - Understanding Aplastic Anemia
15:27 - The Roles of Fathers in Caregiving
18:12 - Building Relationships with Hospital Staff
20:44 - Recognizing Emotional Needs
26:40 - Advice for Parents: Seeking Help and Support
35:08 - Fatherhood and Personal Growth
42:01 Navigating Medical Challenges and Triumphs
Resources
https://www.instagram.com/rsoile6
To listen to more episodes, head to insidethechildrenshospital.com
This podcast is for educational and informational purposes only and is not a substitute for medical advice, diagnosis, or treatment. Every child and family is different. Always talk with your child's healthcare team about questions or decisions related to their care.
The experiences and opinions shared by guests are their own and do not necessarily represent the views of their employers, healthcare organizations, or Inside the Children's Hospital.
