Cystic fibrosis (CF) is thought of as a lung disease, but it affects the entire body. Amber Tresca speaks with Nicholas Kelly, MS, RD—a registered dietitian, public speaker, and cystic fibrosis advocate. His diagnosis is a result of his mother's advocacy and research. Nick describes how he balances wanting to fit in with his determination to stand out, how he navigates chronic illness disclosure in the workplace, and his "triple minority" experience within the CF community. Plus, Nick shares practical nutrition tips to help you rethink your relationship with food.
Chapters:
00:00 – Amber Tresca introduces Nicholas Kelly, RD
01:29 – What is cystic fibrosis (CF)? The GI, pancreas, and full-body impact
02:43 – Dismantling racial misconceptions and the rise of gene therapies
03:48 – Researching symptoms without Google to beat false negatives
05:28 – Choosing excellence over chronic illness limitations
08:16 – Moving from pushing through to body awareness and acceptance
09:09 – Securing attendance flexibility and extended exam time
10:34 – Maintaining health privacy and avoiding workplace bias
11:44 – Advocating as a "triple minority" and bringing passion to clinician-patient communication
14:01 – Rebuilding a realistic relationship with food
17:04 – Meeting unpredictable illness with empathy
18:28 – 3 Energy-saving nutrition hacks for fatigue
20:31 – The nutritional value of sweet peas and the two-rinse low-sodium trick
22:14 – Connecting with Nick Kelly: Website, social channels, and resources
23:18 – Triple-combo CFTR modulator therapies and finding a cure for CF
24:45 – Outro: Episode wrap-up, show notes, and production credits
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