57 - A Conversation with Hawaii FASD Action Group
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57 - A Conversation with Hawaii FASD Action Group

FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.

 

Episode 57 shines a light on the work of the Hawaii FASD Action Group. The Hawaii FASD Action Group was founded in 2014 by Dr. Ann Yabusaki, a psychologist and family therapist. During her 15+ years as a family therapist for Hawaii's Juvenile Drug Court, she encountered increasing numbers of youth and families affected by FASD who did not respond to evidence - based practices. In 2004, she attended a SAMHSA seminar, learned about FASD and she finally understood her clients. She consulted with other providers who shared similar observations and families with children affected by FASD, discovered the gaps in knowledge and FASD informed services in Hawaii and founded the all-volunteer Hawaii FASD Action Group. The Action Group focused on FASD education and awareness through presentations to agencies funded by Hawaii's Departments of Health, Education, Judiciary, Human Services and Public Safety. The Action Group sponsored statewide FASD Conferences in 2017 and 2019 and worked with legislators to craft several bills on FASD awareness and FASD informed services. Through these efforts, the State of Hawaii's Statutes now recognizes FASD. In 2020, the Hawaii FASD Action Group became a 501 (c) (3) nonprofit organization. Currently, the Hawaii FASD Action Group works towards building capacity and infrastructure to continue their mission of creating research, awareness and FASD informed services via their all-volunteer Board of Directors and Action Group.

 

Jeremy and Terra Daniel live on the North Shore of Oahu and they have been married for 22 years. They have 4 children and a service dog, Pineapple. Jeremy holds a degree in Sociology and Terra holds a degree in Organizational Communication. Their family entered the world of FASD after their second daughter was born in 2004 and diagnosed in 2005. Since then, they have been actively involved on the state level, in both Hawaii and Utah, in helping to raise awareness about FASD while searching for ways to help their daughter succeed in a world where little or no services exist. They formed the HOAPILI Group, which is a an organization that hosts monthly parties specifically for individuals with special needs. It is a place where everyone belongs. 

 

Cleo Brown is the Principal Consultant and Community Advocate of Hawaii FASD Action Group. Before leaving her mark on America's most successful online bank, Cleo acquired deep experience in multi-national financial service groups in executive posts, at Custom House, Thomas Cook and Deak International. Cleo have been married for 54 years to Carl Brown, Retired HPD and they are the proud parents of four adult children and seven grandchildren.

In this FABULOUS episode, the Hawaii FASD Action discusses the following topics: how Hawaii FASD Action Group started, how Hawaii FASD Action Group has grown, the supports / services / trainings offered by Hawaii FASD Action Group, the Hoapili Program, plans / goals for 2021 and words of hope.

 

EPISODE RESOURCES -

https://hawaiifasd.org/

Facebook - https://www.facebook.com/hawaiifasd/

Instagram - https://www.instagram.com/hawaiifasd/

 

FASD Hope -

https://www.fasdhope.com/

[email protected]

Facebook - https://www.facebook.com/fasdhope1

Instagram - https://www.instagram.com/fasdhope

Pinterest - https://www.pinterest.com/fasdhope1

LinkedIn - https://www.linkedin.com/in/natalie-vecchione-17212160/

Clubhouse - @natalievecc

 

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