Three years ago, I shared two episodes about my own
family: one where I discussed how I discovered that I was a carrier for my son’s condition, and another where I talked about how much my older daughter struggled with accepting her brother. In the years since, we’ve navigated difficult decisions and agonizing choices, and now, for once, we feel somewhat settled.
In this episode, I’m sharing those decisions, how we made
them, and how they’ll impact our future. Plus, I’m sharing a positive and heart-warming update on how my children have grown their sibling relationship. This episode is so tender, and I’m so honored to share it with you.
Also, huge thank you to our sponsor Functional Formularies! They make incredible, nutritious food for our tube-fed kids that’s easy to access and use. Honestly, if our kids are eating Functional Formularies formula, they’re probably eating better than us!
Links:
Visit the Functional Formularies website and get easy, nutritious, tube-friendly meals for your child!
Listen to Ep 22: It’s All My Fault.
Listen to Ep 40: Wendy + The Sibling Experience.
Follow us on Instagram @the_rare_life!
Donate to the podcast or Contact me about sponsoring an episode.
Fill out our contact form to get a reminder about upcoming discussion meetings and the Skype link to join!
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Join the Facebook group Parents of Children with Rare Conditions.
Access the transcript on the website here.
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