What happens if we go first? Who will love our child and protect them the way that we do? Society has a view of how the parent-child trajectory goes, and the situation with our medically complex and rare kids feels so backwards, so where can we turn to find resources to set up our children and keep them safe when we’re gone?
In this episode, Amanda Griffith-Atkins and I tackle this tough reality. We share notes from this community from all the feelings that come up around leaving our child alone in this world to the many questions we have about planning for their care once we’re gone. We don’t have all the answers, but we do try to leave you with a few hopeful thoughts by the end of this episode. And if nothing else, you can know that you are not alone in your fears and uncertainty.