Ginchy - meaning cool, groovy, happenin', awesome, kick-ass, rockin' .
My guest Viola Dwyer's mission is to bring a greater humanity to the perception of disability.
Viola was born with Spinal Muscular Atrophy, a rare genetic condition that she shared with one of her sisters from birth.
The condition has presented enormous challenges for Viola and her family yet Viola has confronted these challenges with strength, determination, insight and no little good humour.
One billion people around the world live with some form of disability, which is around 15% of the global population, making it the world's largest minority group.
Viola's story is one of tremendous courage and shines the light on how unequally disability is still treated in our society.
Not only has Viola had to deal with the challenges of her condition, but she has also had to overcome a number of further traumatic life experiences.
Including the recent loss of her sister and soul mate to the condition.
The imprisonment and subsequent death of her physician father.
And the continued struggle to find meaningful work and fund 24/7 care.
Despite these challenges, Viola has found joy in her partnership with her husband, Dan,
and the determination to take on the cause of disability awareness through their YouTube channel, The Ginchiest.
I am delighted to be able to share Viola's emotional, candid and raw journey with my listeners.
The challenges she faces daily put our own struggles into perspective. And, of course, she is not alone.
At a time when diversity and inclusion are a significant focus for global society, we need to do so much more to recognise, embrace and support people and their families affected by disability.
I encourage you to seek out their Youtube Channel, the Ginchiest, subscribe and share this story far and wide.
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Episode Credits
Editor and sound engineer: Tim White email: [email protected]
Host: Simon Ratcliffe
Music:
Broken Elegance -Unconditionally
River Meditation - Audioautix
When I'm gone LiQWYD
Scott Buckley - Life is
AB5 Piano strings - Tim White
