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Instagram connected Dr. Lilach and this week’s guest, Olivia Rains. Olivia shares how her hearing loss has affected the quality of her life at all different stages. Listen in as Olivia provides an authentic view into her life living with her cookie-bite, mixed, hearing loss. She touches on topics including the importance of including the child in the process of their diagnosis, trauma that might stem from medical treatment, as well as the individuality of a case-by-case hearing loss.
3:00: Olivia creates artwork under her brand, Last Nerve Anatomy Art. Olivia is thankful that people have connected to her artwork and have expressed how her work has inspired them along their audiological journey.
7:00: Acting aloof and progressing differently than her twin sister, were among the signs that suggested that something was up with Olivia’s hearing. One of Olivia’s grade-school teacher’s voiced concern and helped bring in the intervention of a speech therapist to help her case.
12:00: A doctor once put tubes in one of Olivia’s ears without giving her any anesthesia. This traumatic experience resurfaced when future doctors evaluated her during medical interventions. It is important for doctors to face patients and walk their patients through the operation that they perform on patients, in a trauma-informed practice.
15:00: Piano lessons helped Olivia in ways that surpassed the reasoning behind why she was initially enrolled in music lessons. Every student is different and one needs to take a students’ frequencies and configurations into consideration to understand their hearing and speech development.
17:00: A cleft lip or cleft palate is often associated with ear infections. If your child has either issue, it is very important to be hyper-aware of their health and ensure your loved one receives continuous testing. Often parents may believe their child is whining too much or that they are only hearing what they want to hear- get their hearing tested!
26:00: Auditory processing is different from hearing loss. Rephrasing versus repeating is very important.
35:00: Real time captioning and sign language interpreters are accommodations that have helped Olivia. It is crucial to provide a child who has a hearing loss with accomodations to ensure that they can be a member of the hearing world.
42:00: Her mom once left Olivia crying in the car while she was complaining about pain. This experience added to Olivia’s trauma. It is important to talk through pain and not ignore it.
For more resources and research visit:
http://lastnerveart.com/
https://www.instagram.com/mama.hu.hears/?hl=en
Mentioned In this episode:
All About Advocacy Organizations – Episode 59 with Oren Dvoskin and Damien Kelman, Bekol
An upcoming episode with Juliana Pedri that focuses on Auditory Processing
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