In this Precision Medicine Podcast episode (https://www.trapelohealth.com/precisionmedicinepodcast), we met with lung cancer patients Lisa Goldman and Tori Tomalia to discuss their organization, the ROS1ders (https://ros1cancer.com/), which they created to advocate and support those with ROS1-positive cancer—a group that represents just 2% of lung cancer patients.
We were fascinated by how two women with no medical background could form a highly respected and resourceful group for those with this rare type of cancer. The women told us that when they and a mutual friend Janet were diagnosed with ROS1-positive lung cancer, they came together to learn more about precision medicine treatment options by reaching out to one of their doctors with questions.
What they learned is that there wasn’t much information to be found, and, as the doctor said, they would need to bring together a critical mass of ROS1-positive lung cancer patients to enable better cancer models and the needle on research. That’s exactly what these heroic women did.
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