Today we have with us Mark and Mariah the parents to Emma and Abby from Centennial, Colorado. These sweet sisters not only share a powerful sibling bond, but also share an ultra-rare undiagnosed genetic mutation that is so rare that they are the first two cases in the world. This mutation leads to infantile Spasms, Epilepsy, Lennox-Gastaut Syndrome and more. They share with us their very unique medical journey as well as the impact their close community has had on them. This is Part 1 of 2. Connect with Mark and Mariahwww.lightningandlove.orghttps://www.instagram.com/lightningandlove/https://twitter.com/mariahgillaspieConnect with Go Shout Love:https://goshout.lovehttps://www.instagram.com/goshoutlove/https://www.facebook.com/goshoutlove/

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